Who is Ethan Wakeman from Second Glance: A Novel and what is their importance?

Ethan Wakeman is Shelby's son. He suffers from XP, a disorder that forces him to live his life isolated and in the dark. Ethan feels like a freak, and he longs to be normal. He often sneaks out of the house, exposing himself to the UV light that will eventually kill him. Ethan also becomes obsessed with his death, frightened that he will die before experiencing the good things in life. As a result, he places himself and Lucy, a friend, in harm's way, an act that begins the catalyst that will bring the plot to its conclusion.